Hannah’s Story

My daughter Hannah was diagnosed at 11 months old with EE. She presented with waking at night screaming uncontrollably, she was never able to lay flat on her back. She…

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Luca’s Story

DAY ONE The formula Luca drinks tastes like earwax. I am using up an old box of blackcurrant flavored earwax that Luca refused to drink, which is nearly at its…

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Kylee’s Story

Kylee is seven years old with a twin brother, Tyler. They were born full-term on April 7, 2005.After a normal pregnancy, and our attempt to use breast milk did not…

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Matthew’s Story

Matthew is a very happy young boy who loves to go to school and make people laugh. He takes pride in his school work and it reflects in his grades.…

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Jeramey’s Story

My son, Jeramey Hill, began his battle with an eosinophilic disorder 13 years ago at the age of 5 months. After 5 months of being told that my son was…

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Chayce’s Story

Chayce was born June 6, 2002, with a fairly normal pregnancy. He was twice the size of sissy, weighing in at 8 pounds 9 ounces. Chayce came home and was…

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Nate’s Story

After 9 weeks of hospital bed rest, William Nathan Harris was born via C-Section on May 13, 2002 at 35 weeks gestation. Within minutes after birth he was rushed off…

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Yisroel’s Story

Yisroel Meir was born in 1997 in Jerusalem Israel. When he was born he was coughing alot. On his second day of life he had several episodes of turning blue.…

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Tzivia’s Story

Tzivia was born in 2001. Right after she was born she just screamed, to the point they didn’t want her in the nursery. Her first diaper was full of blood.…

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Miriam’s Story

Miriam was born on December 18, 1995 in Jerusalem Israel. She never was a happy baby, she cried all the time the only time she would be quiet was when…

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