Hailey’s Story

Hailey was born in January of 2003. The fact that she was not entirely healthy was fairly obvious to mom & dad from the beginning; however, it took a little while to convince the doctors that the more than thriving baby was sick. Hailey was hospitalized with an upper respiratory infection at only 12 days old. Her first newborn screening came back borderline for Cystic Fibrosis, and the news was bittersweet when other screenings came back negative, leaving us with the question, what is wrong with our child? It took until she was 15 months old before we were referred to a Gastroenterologist. (He conducted the tests that eventually led to the diagnosis of Eosinophilic Gastroenteritis, but he didn’t make the diagnosis). We hand delivered the Gastroenterology records to a doctor at National Jewish Hospital, where she was diagnosed with Eosinophilic Gastroenteritis.